Following the news of the death of Microsoft CEO Satya Nadella’s son, several articles emerged about how Nadella preferred spending time with his son over everything.
Zayn Nadella, born with Cerebral Palsy (CP), died on Tuesday at the age of 26. In his post, many recalled an October 2017 post that was titled by the Microsoft CEO. The moment that changed our lives forever, He wrote candidly about his experiences as a father and how it changed his life forever.
However, in India, cerebral palsy remains a largely unknown disease. CP is caused by damage to the brain at birth. This leads to abnormal development due to lack of oxygen in the brain. It affects a person’s ability to control their muscles. In widespread public discussion, its inclusion came through popular films, notably Zero and Margarita with a Straw. Many experts believe that this is not enough as parents in India are forced to face ignorance and prejudice.
Dr. Madhukar Bhardwaj, Senior Consultant, Neurology, Aakash Healthcare, Dwarka says, “The disease is more prevalent in rural areas as compared to urban areas as delivery in cities is usually monitored in hospitals.” “Cerebral palsy is almost non-existent in urban environments due to the lack of oxygen during delivery. Due to the lack of modern facilities, births in remote locations can sometimes be complicated, resulting in severe cerebral palsy in the newborn child,” he explains.
“It is very common in India. Approximately, it occurs in five to three cases per thousand births. You have to understand that it is a very difficult situation for the parents. They have welcomed a child with dreams,” Dr Praveen Gupta, Principal Director and Head, Department of Neurology at Fortis Memorial Institute, Gurugram.
“For a normal family, it is very difficult. They have to spend huge amount of time and resources in physiotherapy, cognitive rehabilitation,” he adds.
Bhardwaj emphasized that the situation in the cities is also very dire. It is not just about lack of awareness, but also about lack of experts.
“Efforts to create awareness are minimal. We have qualified doctors, but no centers or specialists to assist these children or their parents. There is very little access,” he says, explaining the seriousness of accessibility that urban people have with people in rural India.
“There is definitely an impact on the mental health of the parents,” he adds, “many doctors refuse to look into such cases and say ‘nothing can be done’. There should be such agencies. who make a comprehensive integrated effort to rehabilitate a child with cerebral palsy to normal life. There is a need to create comprehensive centers that combine medical medical evaluation with interventions such as botox and rigorous physiotherapy,” concluded Gupta, adding that the rehabilitative There will be progress.
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