A 30-year-old woman in the United Kingdom was unable to urinate for over a year. Despite drinking a lot of fluids, she won’t be able to urinate, even if she feels like it. Sharing her experience, Elle Adams said on the social media platform Instagram, “I was very healthy. I didn’t have any other problem. I woke up one day and I couldn’t cry.”
Adams further states that she was diagnosed with a rare disease called Fowler syndrome.
“I woke up one day and I couldn’t cry. I was so worried”, Adams writes in her Instagram post. “I was at breaking point – my life had completely changed. I couldn’t even do something as simple as going to the toilet.”
Adams says she was taken to the emergency room at St Thomas’ Hospital in London, where after describing her symptoms, she was told she had a liter of urine in her bladder.
Specifically, the bladder can hold up to 500 ml of urine in women and 700 ml in men!
Adams was given emergency catheter By the doctors of St. Thomas Hospital. A catheter is a tube inserted into the bladder to drain urine. He was advised to either remove the catheter and try to go to the bathroom or go home and return to the hospital for re-evaluation in three weeks.
His troubles did not go away. On a visit to the urology center a week later, Adams was taught how to self-catheter and was sent home. “The other day a doctor told me I was just anxious and if I went away and did some yoga and fitness then maybe I would be fine,” Adams wrote on Instagram.
The 30-year-old content creator from East London continued to use the device to urinate for more than a year. It was detected after about 14 months and after many tests fowler syndrome and was warned that she may have to urinate using a catheter for the rest of her life.
Specifically, Fowler syndrome is the inability to empty the bladder. The rare condition mainly affects young women. The reason for this is unknown.
Adams said, “I was told how I was suffering from Fowlers. I was talked about with treatment options which were minimal – we tried medication but it didn’t make any difference.”
The content creator was told that the only option left was sacral nerve stimulation (SNS) – A treatment that can help with bladder and bowel problems. The procedure, which will act as a pacemaker for the bladder, provides stimulation through a thin temporary wire inserted near the sacral nerves near the tailbone that control the bladder and bowel. It stimulates the bowel muscles to function normally. According to the outlet, Ms. Adams moved forward with the process in January 2023. Less. It’s made my life easier, that’s all I can say after two years of hell,” she said.
“I’m doing well, I’m on the better side of Fowler. I’m grateful for the difference, I feel better than ever. I couldn’t imagine how I was running before, it was so dry , and it took my life. It was getting hard to imagine it would be like this forever. Now I can wean on my own, I’ve reduced my self-catheterizations a lot. It’s still hard, but It’s better than it was,” the 30-year-old continued.
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