New Delhi The 139th Report on “Cancer Care Planning and Management: Prevention, Diagnosis, Research and Affordability of Cancer Treatment” was submitted to the Rajya Sabha Chairman on Monday, recommending that cancer be declared a notable disease. The Parliamentary Standing Committee on Health and Family Welfare made this recommendation citing the high number of cancer deaths in India.
What is cancer?
cancer It is a disease in which some cells of the body grow uncontrollably and spread to other parts of the body. The ability to cope and recover from the disease depends on certain factors including at what stage the disease was diagnosed. Cancer often has the potential to spread throughout your body. Cancer is the second leading cause of death in the world.
What is a noticeable disease?
A notified disease is any disease that is required by law to be reported to government officials. The collation of information allows officials to monitor disease, and provides early warning of potential outbreaks.
Need for Cancer Registry in India
The Committee expressed its deep displeasure over the National Cancer Registry Program (NCRP) which has been working since 1982 through Population Based Cancer Registry (PBCR) and Hospital based. cancer registry (HBCR) but only 10 percent of the Indian population is covered by PBCRs.
States which need population based registry
The committee recommended the National Center for Disease Informatics and Research (ICMR) to take necessary action to set up a Population Based Cancer Registry (PCBR) in rural areas.
Uttar Pradesh
Madhya Pradesh
Andra Pradesh
Rajasthan Rajasthan
Telangana
Odisha
How does designating cancer as a noticeable disease help?
The Parliamentary Standing Committee has said that an accurate mortality database in the Hospital Information System would improve cancer registry, follow-up and outcome data. The committee has recommended that cancer deaths should be compulsorily reported to the government machinery.
The committee said that cancer A “notified disease” would certainly ensure a robust database of cancer deaths and would also help in determining the exact incidence and prevalence of cancer in the country. It will also help in analyzing risk factors, implementing screening programs and allocating appropriate resources to improve cancer outcomes. The collected data can also be used to formulate standard treatment guidelines that will further strengthen the continuity of cancer care.
portal for cancer registration
The committee, headed by MP Ram Gopal Yadav, has recommended the creation of a portal like CoWIN for registration, real-time data collection, counseling, helpful resources for cancer care as well as interactive tools.
“The committee further recommends that a CoWIN-like web portal for registration, real-time data collection, counseling, helpful resources for cancer care as well as interactive tools may be created by the government to streamline and improve data collection. The portal can also be equipped to help guide people affected by cancer through the treatment and management journey.”
The committee also recommended that the ministry ensure linking of cancer registry data with Ayushman Bharat/PMJY, mortality database and Hospital Information System (HIS) to improve cancer registration, follow-up and outcome data.
cancer deaths in india
The committee, in its report, noted that cancer is still not classified as a notifiable disease resulting in under-reporting of cancer deaths. The committee notes that the ambiguity on the actual cause of death is a major constraint in data collection. It has been brought to the notice of the Committee that many a times death is recorded as mere cardio-respiratory failure without mentioning the actual cause of death.
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